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Tuesday, June 28 • 2:00pm - 3:15pm
#243: Patient Involvement Today and Tomorrow: What’s in It for Patients?

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Limited Capacity seats available

Component Type: Forum
Level: Intermediate
CE: ACPE 1.25 Knowledge UAN: 0286-0000-16-563-L04-P; CME 1.25; IACET 1.25; RN 1.25

Patient engagement (PE) is the latest catch phrase in health care. But how can stakeholders apply it in a meaningful way? This forum will draw a picture of the PE landscape and trends and articulate a path forward to high value patient outcomes.

Learning Objectives

Identify the current patient engagement landscape by providing an overview of initiatives underway that are focused on meaningful patient involvement; Discuss general trends in patient engagement with respect to patient involvement through the research to care continuum, highlighting predictions for how this may impact future efforts; Examine the current and future impact of patient engagement efforts on patients’ life goals, quality of life, and desired clinical outcomes.


Marc M. Boutin, JD


Lode Dewulf

Anton Hoos

Graeme Johnston, CPA

Isabelle Moulon, MD

Theresa M. Mullin, PhD

Bettina Ryll

avatar for Marc Boutin

Marc Boutin

Chief Executive Officer, National Health Council (NHC)
Chief Executive Officer of the National Health Council, an organization that brings together all segments of the health care community to provide a united voice for the more than 133 million people with chronic diseases and disabilities and their family caregivers.

avatar for Lode Dewulf

Lode Dewulf

Vice President and Chief Patient Affairs Officer, UCB
Lode Dewulf has a passion for patient perspectives and understanding. As medical practitioner he deeply realized that good health education was at least as important as good medicines. in 1989 he joined the pharmaceutical industry, to provide good education on diseases and new treatments. In 1999 he took a 1y sabbatical to co-found PlanetMedica, Europe’s first Healthcare internet portal. With now >25y of global pharmaceutical experience he... Read More →
avatar for Anton Hoos

Anton Hoos

Head of Medical Affairs, Amgen GmbH
Tony Hoos currently serves as the Chief of Medical for Amgen in Europe, which includes all therapeutic areas as well as all medical departments in Europe. Tony has been passionate about patient involvement in the development and life cycle of medicines for many years. He has worked extensively with stakeholders to involve patients in the benefit-risk assessment of medicines and he is one of the founders of ‘Patient Focused Medicines... Read More →
avatar for Graeme Johnston

Graeme Johnston

Patient and Member of the Advisory Board of PFMD
Graeme (63) is a retired partner of PWC in London, UK. He had cancer in 2001 and was diagnosed with Rheumatoid Arthritis in 2006. He retired in 2009. Since then he has been active in health and patient advocacy initiatives at a local and national level in the UK. When the PFMD initiative began Graeme was asked to join as an articulate patient from a different background. He is married with three sons aged from 28 to 15.
avatar for Isabelle Moulon

Isabelle Moulon

Head of Patients and Healthcare Professionals Department, European Medicines Agency, European Union
Qualified medical doctor from the University of Grenoble, specialising in endocrinology and metabolic diseases. She joined the European Medicines Agency in 1995. Since 2004, she has been developing the interaction with patients and healthcare professionals and was appointed Head of Patients and Healthcare Professionals Department in December 2013. She is co-chair of the EMA patients’ and healthcare professionals working parties.
avatar for Theresa Mullin

Theresa Mullin

Director, Office of Strategic Programs, CDER, FDA
She leads a number of CDERs strategic initiatives including human drugs international program, data standardization, business informatics, lean management, development of benefit-risk and other decision support tools, program analysis and major user fee negotiations. Currently serving as FDAs lead negotiator for PDUFA 2017 reauthorization and the lead negotiator for the BsUFA 2017 reauthorization. She leads the FDA Patient Focused Drug... Read More →
avatar for Bettina Ryll

Bettina Ryll

Founder, Melanoma Patient Network Europe
Bettina Ryll, MD/PhD founded the Melanoma Patient Network Europe in 2013 and developed a special interest in patient-centric clinical research and drug development. Bettina’s current areas of focus are Adaptive Licensing/ MAPPS , innovative sustainable healthcare models and patient-centered risk/ benefit assessment tools. She lectures and advises on patient-centric drug development, member of ASCO and ISPOR and current chair of the ESMO Patient... Read More →

Tuesday June 28, 2016 2:00pm - 3:15pm
204C Pennsylvania Convention Center 1101 Arch Street, Philadelphia, PA 19107 USA